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Jewish Baby Boy Needs Forever Family Posted by: Michele Fried Posted on: 12/16/04 Adoption
STAR is seeking a family for a baby boy with special needs. If you can be
of help to us in identifying a family, it would be greatly appreciated.
Only home study ready Jewish families will be considered at this time. Baby
boy born 11/26/04 in NY State. Caucasian
Jewish married couple, both 28 years old. This was their first pregnancy -
planned. They want a Jewish family – Reform, Conservative or Orthodox. Baby
boy has Fraser Syndrome (not confirmed, should be confirmed shortly but doctors
feel sure) - also known as Meyer-Schwickerath's syndrome, or Fraser-François
syndrome, or Ullrich-Feichtiger syndrome. Birth
couple have researched this extensively and feel they cannot parent this child.
He is blind - born with no eyeballs and need to have orbits placed to keep his
eye sockets growing with the rest of his head. He has a bilateral cleft lip and
palate. Birth mother feels bad for the baby and wants him to be with a family
where he is wanted for who he is. Birth father is very supportive and feels this
is best. As of yesterday the baby weighed 5443 grams. He will need surgery for
cleft lip and palate and for his eyes. He also requires his anus to be dilated
daily - something simple that parents can do and something that he should not
need long-term. Baby
is being transferred tomorrow to a facility until he can be adopted. Birth
couple would like him to be adopted ASAP. They would like an open adoption with
pictures and letters (or email), visit at time of placement, and possibly phone
conversations. This
couple would like to view adoptive parent profiles immediately. Home
studies and profiles may be sent to Adoption STAR at the address below. Here
is brief information on this syndrome: Fraser
Syndrome is a rare genetic disorder characterized by partial webbing of the
fingers and/or toes (partial syndactyly), kidney (renal) abnormalities, genital
malformations, and/or, in some cases, complete fusion of the eyelids (cryptophthalmos)
that may be associated with malformation of the eyes, causing blindness. In
infants with Fraser Syndrome, renal malformations may include improper
development (dysplasia), underdevelopment (hypoplasia), or absence of one or
both kidneys (unilateral or bilateral renal agenesis). In affected males, one or
both testes may fail to descend into the scrotum (cryptorchidism), the urinary
opening (meatus) may be abnormally placed on the underside of the penis (hypospadias),
and/or the penis may be abnormally small (micropenis). Infants and children with
Fraser Syndrome may also have additional abnormalities including malformations
of the middle and outer ear that may result in hearing impairment. Fraser
Syndrome is inherited as an autosomal recessive genetic trait. Much
more information can be found on the Internet. One link that stood out is: http://www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?term=Fraser+syndrome&field=name Michele Adoption
STAR, Inc. A
NYS Authorized Non-Profit Adoption Agency STAR
stands for Support, Training, Advocacy and Resources Office
716-691-3300 Fax
716-691-1066 E-Mail
michele@adoptionstar.com Website
www.adoptionstar.com
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